Rare Disease in the News

News3LV

Nevada woman's rare disease causes thousands of painful lumps
News3LV
"Pain so deep that it hurts to your skeletal bones,” says Momi who has undergone a mastectomy and hysterectomy as a result of the disease. "So far I have had four tumors removed-- two from each breast, I had one removed from my shoulder, I have had one ...

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Chicago Tribune

Mokena infant with rare disease needs new liver
Chicago Tribune
Dr. Seed Mohammad, an assistant professor of pediatrics at Northwestern University and an attending physician at Lurie Children's Hospital, said, "Nathan has an extremely rare liver disease that is progressing rapidly. "We have our suspicions as to ...


Forbes

When Her Daughter Was Diagnosed With A Rare Disease, This Accountant Started A ...
Forbes
Karen Aiach, 43, is the founder and CEO of Lysogene, a biotech company developing gene therapy treatments for rare central nervous system diseases. Remarkably, the French native had no background in science or the pharmaceutical industry, let alone ...

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WHAG

Local woman struggles with rare disease, seeking stem cell treatment
WHAG
HAGERSTOWN, Md. – A local woman fighting a rare disease is currently seeking treatment to improve her quality of life. As her battle continues, she said complications with funding are holding her back. "I can't be the mother, I can't be the grandmother ...


Sun Sentinel

Y-100 radio host Froggy spreads awareness of his rare disease
Sun Sentinel
Langley works with Straight Talk Acromegaly, an awareness initiative, to share his personal experiences through educational videos and to offer hope and encouragement to others living with the disease. "I think people are much more aware of the ...

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ABC News

Girl Raises $47000 With Bracelets to Help Best Friend With Rare Disease
ABC News
A 9-year-old girl has raised $47,000 by selling bracelets to get medical treatment for her best friend, who has a rare and dangerous skin disease. Bethany Walker started making small rubber bracelets in the hopes she could sell them for a few dollars ...
9-Year-Old Girl Raises $47000 Making Bracelets To Help Best Friend With Rare ...The Inquisitr

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Labiotech.eu (blog)

Struggling AstraZeneca sells Rare Disease drug to Genzyme-Sanofi for €300M
Labiotech.eu (blog)
The Pharma giant AstraZeneca is still struggling even if in better shape. It just sold one of his rare disease drug already on the market to THE rare disease Biotech Genzyme, now part of Sanofi. AstraZeneca is under pressure. Last April 2015, the ...
Genzyme Strengthens Endocrinology Portfolio with Acquisition of Rare Disease ...MarketWatch
GENZYME STRENGTHENS ENDOCRINOLOGY PORTFOLIO WITH ACQUISITION OF RARE DISEASE ...The FINANCIAL
Sanofi: Genzyme Strengthens Endocrinology Portfolio with Acquisition of Rare ...PharmiWeb.com (press release)

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Valley News Live

Rare Disease Causes Headache for Dakota Zoo
KFYR-TV
But zoo officials set up a barrier around this exhibit after finding out other animals have contracted the rare disease tularemia. The zoo is taking extra precautions to ensure that the disease wont spread to other animals or people. The sickness ...
Rabbit fever, rare disease spread from animals, insects, found in four ND countiesINFORUM
Health officials report increases of rare infectious diseaseWashington Times

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The Hindu

Focusing on rare diseases
The Hindu
In yet another instance of collaboration between scientists and doctors, Indian Organisation for Rare Diseases (I-ORD) was formed earlier this year to sensitise policy-makers and convince pharmaceutical industry to focus on the problem of rare diseases ...


Sydney Morning Herald

Free drug for rare disease sufferers
9news.com.au
An expensive life-saving drug for Australians suffering a rare and deadly muscle disease will be subsidised by the federal government. Health Minister Sussan Ley has committed $40 million over five years to subsidise Myozyme for adult patients with ...
Pompe disease sufferers offered life-saving drug by Sussan LeySydney Morning Herald
Share this storyHerald Sun

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